It really wouldn’t surprise me if the autonomic dysfunction was a partial cause of it. I still find it has surprises in store for me. I can exercise and intensely, but only in the right environment. Humidity has to be right, fully hydrated, heat has to be right, my heart rate has to be monitored, otherwise my blood pressure will plummet and the rest of my body does too.
When I was a kid, i was always almost last place in phyed running. Id faint at baseball, basketball, carrying heavy things. Eventually a cardiologist said “yo wait a minute” and did a whole series of tests and found that I sweat abnormally, my body doesn’t link heart rate and blood pressure correctly, and there’s something up with how my digestive system responds to food.
It shares similarities with several neuropathies, but I’m not diabetic, and I didn’t have any illnesses as a kid that would cause it that we know of. It’s also almost identical to Long-COVID syndrome, so I was kind of super happy that appeared, and hoped that I might get some answers.
Man, that’s a whole syndrome messing with you. Afaik, nobody has found what causes the body to do it, but everyone I’ve known that deals with it end up so frustrated before they get diagnosed. Hell, even afterwards, because treatment options aren’t exactly great.
Thanks for the words of encouragement.
It really wouldn’t surprise me if the autonomic dysfunction was a partial cause of it. I still find it has surprises in store for me. I can exercise and intensely, but only in the right environment. Humidity has to be right, fully hydrated, heat has to be right, my heart rate has to be monitored, otherwise my blood pressure will plummet and the rest of my body does too.
When I was a kid, i was always almost last place in phyed running. Id faint at baseball, basketball, carrying heavy things. Eventually a cardiologist said “yo wait a minute” and did a whole series of tests and found that I sweat abnormally, my body doesn’t link heart rate and blood pressure correctly, and there’s something up with how my digestive system responds to food.
It shares similarities with several neuropathies, but I’m not diabetic, and I didn’t have any illnesses as a kid that would cause it that we know of. It’s also almost identical to Long-COVID syndrome, so I was kind of super happy that appeared, and hoped that I might get some answers.
Man, that’s a whole syndrome messing with you. Afaik, nobody has found what causes the body to do it, but everyone I’ve known that deals with it end up so frustrated before they get diagnosed. Hell, even afterwards, because treatment options aren’t exactly great.
Sorry you’re dealing with all that
Yeah the diagnosis was POTS way back when. And the treatment is Gatorade and potato chips and small doses of beta blockers to limit the heart rate.
I guess I didn’t think that it would affect everything related to the autonomic system. Yay, even more surprises.